Doing Phenomenological Research in Hematology: The Experience and Benefits According to Researchers’ Perspective
DOI:
https://doi.org/10.6092/issn.1825-8670/16499Keywords:
Phenomenological research, Reflexivity, Epochè, Care, HematologyAbstract
Doing phenomenological research entails a complex process that is only minimally published in scientific journals. What is often missing reflects how being in research calls into question the researchers themselves. Anyone who has conducted qualitative empirical research knows that personal engagement does not come at no cost; there are multiple pedagogical and professional practice gains. This article’s aim is to share the phenomenology behind phenomenology: the reflection and personal experience of doing/being in phenomenological research and the personal narrative of what this experience has meant concerning the authors' own context: health care and nursing. Taking advantage of a conducted research exploring the lived experience of family caregivers of hematological patients assisted at home, we propose considerations about the perceived epistemic and cognitive gains, the formative and personal/professional sequels of having been reflective participants of phenomenologically oriented research.
References
Alam, S., Hannon, B., & Zimmermann, C. (2020). Palliative Care for Family Caregivers. Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 38(9), 926–936. https://doi.org/10.1200/JCO.19.00018
Beck, C. T. (1994). Phenomenology: Its Use in Nursing Research. International Journal of Nursing Studies, 31(6), 499–510. https://doi.org/10.1016/0020-7489(94)90060-4
Bee, P. E., Barnes, P., & Luker, K. A. (2009). A Systematic Review of Informal Caregivers’ Needs in Providing Home-based End-of-life Care to People with Cancer. Journal of Clinical Nursing, 18(10), 1379–1393. https://doi.org/10.1111/j.1365-2702.2008.02405.x
Callahan, D. (1973). The WHO Definition of ‘Health’. The Hastings Center Studies, 1(3), 77–87. JSTOR. https://doi.org/10.2307/3527467
Capodanno, I., Rocchi, M., Prandi, R., Pedroni, C., Tamagnini, E., Alfieri, P., … Ghirotto, L. (2020). Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study. International Journal of Environmental Research and Public Health, 17(11). https://doi.org/10.3390/ijerph17114036
Cardano, M. (2011). La ricerca qualitativa. Bologna: Il Mulino.
Coggi, C., & Ricchiardi, P. (2005). Progettare la ricerca empirica in educazione. Roma: Carocci.
Courtois, B. (1995). L’expérience formatrice : entre auto et éco formation. Éducation Permanente, 122, 31-45.
Creswell, J. W., & Creswell Báez, J. (2020). 30 Essential Skills for the Qualitative Researcher (Second Edition). Thousand Oaks, CA: Sage Publications, Inc.
Ghirotto, L., De Panfilis, L., & Di Leo, S. (2020). Health Professionals Learning Qualitative Research in their Workplace: A Focused Ethnography. BMC Medical Education, 20(1), 269. https://doi.org/10.1186/s12909-020-02191-5
Giorgi, A. (2000). The Status of Husserlian Phenomenology in Caring Research. Scandinavian Journal of Caring Sciences, 14(1), 3–10. https://doi.org/10.1111/j.1471-6712.2000.tb00554.x
Giorgi, A., & Giorgi, B. M. (2003). The Descriptive Phenomenological Psychological Method. In Qualitative research in psychology: Expanding perspectives in methodology and design. (pp. 243–273). Washington, DC, US: American Psychological Association. https://doi.org/10.1037/10595-013
Holloway, I., & Galvin, K. (2016). Qualitative Research in Nursing and Healthcare. Oxford: John Wiley & Sons, Ltd.
Husserl, E. (2002). Idee per una fenomenologia pura e per una filosofia fenomenologica (V. Costa, Trans.). Torino: Einaudi.
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic Inquiry. Newbury Park, CA: SAGE Publications.
McGrath, P. D., & Holewa, H. A. (2007). Description of an Australian Model for End-of-life Care in Patients with Hematologic Malignancies. Oncology nursing forum, 34(1), 79–85. https://doi.org/10.1188/07.ONF.79-85
Moja, E. A., & Vegni, E. (2000). La visita medica centrata sul paziente. Milano: Raffaello Cortina Editore.
Mortari, L. (2007). Cultura della ricerca e pedagogia. Prospettive epistemologiche. Roma: Carocci.
Mortari, L. (2017). Il metodo fenomenologico. In L. Mortari & L. Zannini (Eds.), La ricerca qualitativa in ambito sanitario (pp. 57–87). Roma: Carocci.
Mortari, L. (2019). La fenomenologia empirica. In L. Mortari & L. Ghirotto (Eds.), Metodi per la ricerca educativa (2nd ed., pp. 41–77). Roma: Carocci.
Mortari, L., & Saiani, L. (2013). Gesti e pensieri di cura. Milano: McGraw Hill.
Mortari, L., & Zannini, L. (Eds.). (2017). La ricerca qualitativa in ambito sanitario. Roma: Carocci.
Moustakas, C. (1994). Phenomenological Research Methods. Thousand Oaks, CA: Sage Publications, Inc.
Pineau, G. (1978). Les possibles de l’autoformation. Éducation Permanente, 44, 17-30.
Pineau, G. (1983). Produire sa vie : autoformation et autobiographie. Montréal: Éditions coopératives Albert Saint-Martin.
Polit, D. F., & Beck, C. T. (2004). Nursing Research. Principles and methods. Philadelphia, PA: Lippincott Williams & Wilkins.
Richards, L., & Morse, J. M. (2012). README FIRST for a User’s Guide to Qualitative Methods (Third Edition). Thousand Oaks, CA: Sage Publications, Inc.
Sackett, D. L., Rosenberg, W. M. C., Gray, J. A. M., Haynes, R. B., & Richardson, W. S. (1996). Evidence Based Medicine: What it is and What it isn’t. BMJ, 312(7023), 71–72. https://doi.org/10.1136/bmj.312.7023.71
Sasso, L., Bagnasco, A., & Ghirotto, L. (2015). La ricerca qualitativa. Una risorsa per i professionisti della salute. Milano: EDRA.
Todres, L., Galvin, K. T., & Holloway, I. (2009). The Humanization of Healthcare: A Value Framework for Qualitative Research. International Journal of Qualitative Studies on Health and Well-Being, 4(2), 68–77. https://doi.org/10.1080/17482620802646204
WHO Constitution. (2023). Retrieved 20 February 2023, from World Health Organization website: https://www.who.int/about/governance/constitution
Woodman, C., Baillie, J., & Sivell, S. (2016). The Preferences and Perspectives of Family Caregivers Towards Place of Care for their Relatives at the End-of-life. A Systematic Review and Thematic Synthesis of the Qualitative Evidence. BMJ Supportive & Palliative Care, 6(4), 418. https://doi.org/10.1136/bmjspcare-2014-000794
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